Thank you for supporting the Emory Metabolic Camp's 25th Anniversary Momentum  campaign. This crowdfunding campaign has ended, but you can still support our project. Give today!

Celebrate Emory Metabolic Camp's 25th Anniversary

$26,270
105%
Raised toward our $25,000 Goal
71 Donors
Project has ended
Project ended on January 27, at 11:59 PM EST
Project Owners

Celebrate Emory Metabolic Camp's 25th Anniversary

School of Medicine logo

What is the Emory Metabolic Camp?

The 25th Annual Metabolic Camp at Emory University will take place June 17-22, 2019. This one-week summer program—the only national event of its kind—brings 30-40 female campers aged 12 and older with Phenylketonuria (PKU) or Maple Syrup Urine Disease (MSUD) to Emory for fellowship, nutrition counseling, and education to prevent Maternal PKU Syndrome (MPKUS). Our research-based camp model takes a holistic approach to the lifelong medical nutrition management of their inherited metabolic disorders (IMDs) and empowers campers to take charge of their futures as they live, learn, and play in a supportive environment. The Camp Director is Rani H. Singh, PhD, RD, LD, and Camp Coordinator is Rosalynn Borlaza Blair, MA in Department of Human Genetics at School of Medicine.

Metabolic Camp goals include:

  • reviewing dietary and medical management recommendations for PKU and MSUD prior to and during pregnancy
  • teaching about genetics and IMDs, MPKUS, reproductive health, and family planning
  • fostering a support network to share experiences and connect with other females who have PKU or MSUD
  • researching the impact of the above interventions on the transition to adulthood, pregnancy, quality of life, and overall health outcomes

Metabolic Camp Poster

Why we need your support

The full cost of Metabolic Camp—Emory campus lodging, low-protein meals, classes, and activities—is approximately $2,000 per camper. Aware of the financial constraints of patients and families, the camp offers a subsidized camper registration fee of $375 per person. However, many campers still struggle to pay this reduced registration fee. Thanks to generous donor and foundation support we have been able to accommodate every camper.

Supporting this campaign:

  • allows more girls and women with PKU and MSUD to attend Metabolic Camp, despite financial constraints, by funding camper lodging and meals
  • empowers girls and women with PKU and MSUD to independently manage their disorder and improve their diet adherence
  • educates girls and women about family planning for healthy birth outcomes by funding guest experts, activities, and field trips
  • reduces the isolation of girls and women with PKU and MSUD by connecting them with others living with this rare disorder

Campers showing their strength

Levels
Choose a giving level

$25

Friend

Donate $25 for the 25th Annual Metabolic Camp

$50

Supporter

This amount helps provide a week of low-protein modified foods (LPMFs) for one camper

$100

Donor

Help provide a week of low-protein modified foods (LPMFs) for two campers

$500

Sponsor

This will help provide a week of low-protein modified foods (LPMFs) for 10 campers

$2,000

Champion

Provide the full cost of attending the Metabolic Camp for one camper

$6,000

Hero

Provide the full cost of attending the Metabolic Camp for three campers

$10,000

Benefactor

Provide the full cost of attending the Metabolic Camp for five campers

Our Crowdfunding Groups